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Jacob preschool to grade 8
Welcome to our Child Web Page. It has been provided to keep people updated about our Child.Jacob was diagnosed with Acute Myeloid Leukaemia with 16/21 marker on the 1st of November 2003 and relapsed on the 22nd of September 2004 jacob is the youngest of our four children he is sport mad and very active.he has the strangest sense of humour loves animals most styles of music and funny movies he also loves to cook he is spoilt rotten by his big sister jacinta,and brother jonathon and is best mates with his brother ryan.
Jacob Michael Scott McLeod-Steinmetz was born on the 17th of June 1991at 6:00am
Weighing a healthy 8pounds 9oz.jacob made his way into the world in a hurry and that is they way he was from that day on, in a hurry to do as much as he could. He walked early, could ride a bike when most kids are still on tricycles. He had many loves in his life his family, Soccer, all the lord of the rings movies, his animals. Our Jacob never did things by ??s, if he loved you, he loved you with every beat of his heart. He played soccer as if every game was a grand final, win or lose he came off the field with a smile he just loved to play. Rain, hail or shine he was out there kicking the soccer ball with his brother Ryan. Those of you who know our Jake know how fanatical he was on anything to do with ?Lord of the rings? his room is covered with anything to do with the movies even taking down all of his trophies, ribbons and medallions to make room for his posters. our Dogs, cats and fish were his pride and joy he is a very gentle kid. But all boy ;-)
When Jacob was diagnosed with Acute Myeloid leukaemia on the 1st of November 2003. Our world was sent into a spin the rest of us fell apart but not Jake he took it all as an adventure he was determent to fight and fight he did,
He had set back after set back he was unable to finish his rounds of chemo due to a fungus (Aspergilus) that almost took his life how he fought!..6 months of remission gall stones, almost loosing his eye. he fought. never once asking ?why me?? he relapsed in September 2004, again he fought. He had a Bone marrow transplant in November 2004 every thing seemed to be ok until his 93 day L.P and BMA (February)it showed that the leukaemia was back. we were told to go home and make arrangements. When we told Jacob that he was going to die, he! Was more concerned about his brothers and sister then himself. Jacob was determent to live each and every day to the fullest and he did for four more months. he defied the doctors(they wanted his to roll over and give up)and kept fighting until finally the damage the medications had done to his liver and the leukaemia was to much for his body to fight anymore Our Jacob died at home in his own bed as far away from the hospital environment we could get him, 1 day before his 14th birthday . 16th June 2005
Jacob has left us with the knowledge that true courage and strength exists that there is joy in the smallest of things and his smile could light up a room. Jacob truly is a hero in so many ways he wasn?t beaten by the leukaemia or by the doctors he kept his sense of humor his love of life and neither of them could take that from him .we are proud to say we knew and loved him .


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Jake Capalaba Academy team Jake Brisbane city U11DV1 Jake age 6 Mooroondu Capalaba bull dogs ;-)

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Thank you to jacob's BonemarrowDonor.
we don't know who you are but you will always be in our hearts x x
Become a donor and save a life
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Sea world Jacinta Jake Sydney Zoo 2005

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Quilt of memories










Big Brave Banners

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"You know you're the parent of a kid with cancer when....
Kids with hair look strange to you! ;-)
You can sleep anywhere and anything that reclines more than 15 degrees looks 'comfy' ;-)
You don't realize the sharps container is on the kitchen table until half way through dinner ;-}
You enjoy the trip to the hospital at 3am because there aren't any cars on the highway ;-)
You hear a truck backing up and think it's the IV alarm beeping ;-)
Med students ask to borrow your notes ;-)
You wrap presents and packages with surgical tape ;-)
Waiting for an hour doesn't seem a long time anymore compared to the wait at the doctor?s appointments-
You have syringes in your cutlery rack in the dishwasher
Every little thing can make you cry but this list has you rolling on the floor ; -)
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The difference between the impossible and the
possible lies in ones determination..

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Jacob in action
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When a child is diagnosed with leukaemia, their life is turned upside down overnight. Together with their family, their lives begin to revolve around the hospital for months and even years. In addition to the physical side-effects of treatment, nausea, hair loss, stomach problems mouth and stomach ulcers, there are many other problems which result from this treatment - resulting from time out of school, and lengthy periods away from friends.
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Though we know heaven has welcomed a very special person?
Our Hearts still feel the sorrow




Our Angel Children


Image and video hosting by TinyPicThank you Corol ^i^Michaels Mum
And the lord replied
My precious child, I love you and would not leave you during
Your times of trails and suffering.
When you see one set of footprints it was then that I carried you.
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Carl Baron and Jake at Nova Brisbane Jake with the Brisbane lions


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The Drawing of Jacob by Barry (RBCH) Jacob with the whale painting with his name on it outside banksia ward RBH


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CLICK HERE


Jacob's Memorial site QOL Memorial
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Jacob's Christmas page
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Easter Page

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Journal

Thursday, September 18, 2008 12:00 PM CDT

Tonight was the Leukaemia foundation's "Light the night" walk
Our family were all there and I'm sure Jake was there in spirit too
It was a beautiful night (though it did look like it was going to rain there for awhile)
We caught up with Joseph ( aka bob the builder ;-) (though he told me tonight he doesn't go by that any more now he is 8 :-) ) and his family I wished we had more of a chance to catch up
...also had the pleasure to meet Tracy and her little Corey who is an AML survivor which is fantastic
Thank you Tracy and family for joining our "leukaemiaSux! Remembering Jacob team ...I meant to ask you for your email address if you are reading this could you send it to me ...we somehow lost track of you during the walk ..and would love to catch up again
So I can know how well Corey is doing ..

On the walk we carried different coloured balloons Gold for someone that we have lost ,White for a survivor and Blue for hope .. They all looked lovely walking down the river path and over the goodwill bridge ... It was wonderful to see so many people there with lots of laughter
It was also nice to see a gold balloon and ask wo they were remembering and then being Abe to talk about Jake to them as well
I missed Jake tonight as I always do ..it would have been lovely to have a white Balloon with his name on it instead of a gold one .....
Jacob Michael, please always know that you are loved beyond words and always will be ...you are missed with every beat of our hearts ...
Love always Mum
Thank you Jacinta ,Jonathon, Ryan, James, Melinda, Angel,Romi,Kane,Jade,Douglas our family that made the night so special love Mum and Dad ( aunty Danny and uncle Jon )
Thank you Tracy Georgia Corey and family , may you always know love and good health Jenny Alan Joseph and Samantha it was wonderful to see you and to see how well Joseph is :-)
Thank you to everyone that sponsored our team in Jacob's memory you will never know what it has meant to us
Love Jacob's mum
PS thank you Joy for the photo of the walk from your high rise view ( lucky bugga;-)

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