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Hawk Larkman

Welcome to Hawk's web page.Please remember to sign the guest book and let him know you care.

Our hope is that you will learn and be blessed by the experiences our son had had to endure in his battles living with Tuberous sclerosis.

Tuberous sclerosis is a genetic condition. Hawk inherited his from his father. There are two genes associated wit it and appropriately they are named TSC1 and TSC2.

TSC can effect any and sometimes all of the major organs in the body with unusual growths called tubers(or tumors). These are non cancerous, but can reak havoc on the normal functions of the organs.

For Hawk, the organs effected are his heart, brain , skin, and kidneys. On 2-13-2007 Hawk had surgery to remove a tuber from his brain that was causing uncontrollable seizures.There are others in his brain that cause behavior problems but we hope they will not cause any more seizure activity. We Visit the cardiologist and nephrologist annually to be sure there are no problems with his ehart and kidneys.

Hawk is in ninth grade this year.

Hawk is an amazing young man and despite the challenges his TSC has placed in our lives, we are so blessed to be loved by him. He teaches us everyday that there is so much more to life than any "healthy" person could ever imagine. His love and hard working spirit are such an inspiration as he overcomes the devastation that TSC can cause!

Hawk, You are my Hero!!

I want to also send a shout out to Hawk's brothers who have embraced the challenges before them concerning Hawk's disabilities with such grace and love. Bear, Wolf, Raven, you guys are so great, Hawk is blessed to have you for brothers!

The Big Brave Banner Site

*HUGS* TOTAL!
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Rebecca Weber's and Hawk's map of friends

Journal

Saturday, December 20, 2008 8:05 AM CST

Wow! Where has the time gone? I have not added anything new here is quite a while, a lot has happened in our lives this year but not about Hawk's health. The only new thing there was when the insurance company decided to change hid depakote to generic. He did not do well with that, lethargic, out of focus and some possible focal seizures where his lip would not stop twitching. We were able to get a "name brand only" prescription and all that has gone away. Because of this we are keeping him at his current dose despite the fact that he has been seizure free for so long, just to be safe. Hawk is doing well in school, is more active in church and is growing up so fast. Thanks to everyone for their continued thoughts and prayers.

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Hospital Information:

Hawk is Home!!!

Links:

http://www.geocities.com/tsc_friends/   What we affectionately call the
http://www.massgeneral.org/livingwithtsc/   wonderful site by the people at the carol and james herschot center for tsc
http://www.tsalliance.org/   Tuberous Sclerosis Alliance- where you can learn more about this condition .

E-mail Author: emeraldskybeauty@yahoo.com

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent. This information does not confirm that anyone is or was actually a patient at any facility.

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