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Hawk Larkman


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Welcome to Hawk's web page.Please remember to sign the guest book and let him know you care.

Our hope is that you will learn and be blessed by the experiences our son had had to endure in his battles living with Tuberous sclerosis.

Tuberous sclerosis is a genetic condition. Hawk inherited his from his father. There are two genes associated wit it and appropriately they are named TSC1 and TSC2.

TSC can effect any and sometimes all of the major organs in the body with unusual growths called tubers(or tumors). These are non cancerous, but can reak havoc on the normal functions of the organs.

For Hawk, the organs effected are his heart, brain , skin, and kidneys. On 2-13-2007 Hawk had surgery to remove a tuber from his brain that was causing uncontrollable seizures.There are others in his brain that cause behavior problems but we hope they will not cause any more seizure activity. We Visit the cardiologist and nephrologist annually to be sure there are no problems with his ehart and kidneys.

Hawk is in ninth grade this year.

Hawk is an amazing young man and despite the challenges his TSC has placed in our lives, we are so blessed to be loved by him. He teaches us everyday that there is so much more to life than any "healthy" person could ever imagine. His love and hard working spirit are such an inspiration as he overcomes the devastation that TSC can cause!

Hawk, You are my Hero!!



I want to also send a shout out to Hawk's brothers who have embraced the challenges before them concerning Hawk's disabilities with such grace and love. Bear, Wolf, Raven, you guys are so great, Hawk is blessed to have you for brothers!


The Big Brave Banner Site








*HUGS* TOTAL!
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Rebecca Weber's and Hawk's map of friends


Journal

Tuesday, January 22, 2008 11:36 AM CST

Well, we are now 11 months post op and have not seen one single seizure. We could not be happier! :) Hawk is doing well in high school. He has struggled recently with behavior problems but I am hoping that it was just the stress of the holidays and that he will settle down as we charge head on into a new year. We are all so glad to have 2007 in our rearview mirror! Make a Wish has sent us free ski passes to use this winter and I plan to take the boys to have some fun in the snow as we celebrate Hawk's one year anniversary of being seizure free. What a fantastic way to celebrate Valentines day with someone we all love so much who is healthier than he has ever been. I will try to remember to take pics so I can share them with everyone.

Hope all our friends are healthy.

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Hospital Information:

Hawk is Home!!!



Links:

http://www.geocities.com/tsc_friends/   What we affectionately call the
http://www.massgeneral.org/livingwithtsc/   wonderful site by the people at the carol and james herschot center for tsc
http://www.tsalliance.org/   Tuberous Sclerosis Alliance- where you can learn more about this condition .


 
 

E-mail Author: emeraldskybeauty@yahoo.com

 
 

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