Alex - Boy Scout and Lego Builder

Cancer has "Lego" of Alex, and he has been in remission for three years!!

Alex was diagnosed with Stage IV FH Wilms' Tumor on April 26, 2004. Three tumors were removed on April 30th from his right lung, his central line was placed in that surgery and a bone marrow biopsy was done from his hip. The main tumor and right kidney were removed on July 28th in a 4 hour surgery, before which he was immune suppressed with neutrophil counts below 500. Other hospitalizations for infections in his central line include May, June and October. His central line was removed in October due to recurring infections and a PICC line was placed in his right arm for 5 weeks. 2100 cGy of radiation to his lungs and the tumor bed was finished on August 20th and chemo was finally done as of November 16th, 2004!
He is in remission!!






Check out this link: Alex was in the news!!

John 9:2 & 3:
His disciples asked him, 'Rabbi, who sinned, this man or his parents, that he was born blind?' 'Neither this man nor his parents sinned,' said Jesus, 'but this happened so that the work of God might be displayed in his life.'"

Praise the Lord! For he has heard my cry for mercy. The Lord is my strength, my shield from every danger. I trust in him with all my heart. He helps me, and my heart is filled with joy. I burst out in songs of thanksgiving.
Psalm 28:6-7 NLT


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Write to Congress and support the Conquer Childhood Cancer Act of 2007, which will provide federal funding and a national database of childhood cancer patients and much more!! This legislation has been re-introduced to Congress! Please write to your Congressmen and women to support it! Thank you!!

"The National Cancer Institute (NCI) will again cut the money they give to CureSearch. It is very frustrating. When you look at the NCIA budget and see that all the other cancer areas continue to get more money each year but they continue to take away for childhood cancer. ...Due to the continued cuts, ***50 percent of the new studies*** that were to start this year have been cut." - D. Brestel

Parents of children OFF TREATMENT!: COG (Children's Oncology Group) has a long term guidlines document on their website. Know what the late effects are for your child!! COG's Long Term Guidelines

Journal

Wednesday, June 18, 2008 9:16 AM CDT

News about Alex is after this update!
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Update:
Well, they took lymph nodes to be sure there was no involvement, but look like there is some. It will affect the regimen they put her on, but we hope it will still be effective and a cure for her. Thank you again for all your prayers!

Aunt Twyla is out of surgery and in the ICU recovering from her lung surgery to remove the cancer they found a couple of weeks ago. They only took the top lobe of the right lung (YEA!) and got clean margins. The PET scan showed no signs of any other spots they need to take out, including lymph nodes, but the surgeon took some for testing anyway, just to be sure. We're very glad he is so careful. She is recuperating with her husband and daughter at her side in the hospital...and her daughter JUST passed her boards and is now officially a nurse! So, this is baptism by fire, I'm afraid for Paige, but she has seen a lot in clinicals, so hopefully she will have good insights as to what's going on. My mom, too, is a nurse, so we have the medical stuff pretty well covered. :)

Keeping up the hope that she will have no lymph node involvement, we expect her chemo will be short and sweet, but effective. We have yet to hear what the plans will be on that front.

Thank you all so much for your prayers and we're so happy to get the news they didn't have to take the whole lung! :)
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Now for MORE news about ALEX!

Update here too....
Due to lack of interest, the Boy Scout trip has been cancelled, but Jeff is still going to take Alex anyway, even if they don't go to Missouri. Camping with your dad is so important to boys this age, I think, and I'm glad they aren't letting it get them down! Onward and upward!!

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He has joined the Boy Scouts here in town and will be going on his first campout starting this Sunday morning! They are going for 4 days and 3 nights to Missouri to visit Meramec Caverns, Hermann, MO, the Piasa bird cliff painting at the Mississippi (we hope!!), and the Lewis and Clark Historical Site where we have a personal friend (Jeff's best man and best college buddy) who is the director at the interpretive center there! Alex has "connections" in all kinds of places! ha! He and Jeff are going with the Scouts and should have a wonderful time camping and hiking from Sunday morning to Wednesday night this coming week. I'll see if I can get Jeff to take pictures and share them with you! He looks so good in his uniform! (Alex, I mean!) :)

Things are great here this summer....and we are praying for those of you suffering with wildfires, tornadoes and floods that you'd have strength to get through this tough time. We'll have crops, even if it is a late harvest, barring any more natural disasters, but boy we know there are a lot of you who aren't going to get a yield this year. You are always in our thoughts and prayers.

Love always,
The Scott Family
Jeff, Jen, Stephanie, Carson and our hero, ALEX!

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E-mail Author: jenscott90@hotmail.com

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