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Good luck with his MRI on Monday, I'm sure everything is fine. Owen is the same way he hops, jumps, or bounces where ever we go.
Cyndi Lyons (Owen's Mom) <superowenrules@yahoo.com>
ELKHORN, WI - Saturday, December 20, 2008 6:55 PM CST

Good Luck. I will be interested in seeing what they have to say, Owen is STILL having one seizure a day and they last around 10 minutes. It just breaks my heart to hold him during it. Owen has an EEG in two weeks, hopefully they can figure something out. I hope Nicolas can stay off the medication. I will be thinking about you guys.
Cyndi (Owen's Mom) <superowenrules@yahoo.com>
WI - Monday, March 17, 2008 8:25 PM CDT

Hey there - You surely presented a thorough update. It's amazing how much you have learned through your research. You might even be challenging your doctors with what you have learned! Good for you. I will be interested to hear the results of the EKG and Echogram when you hear. It does seem a long time to wait.

Love you guys... Auntie Betty
Betty-Jane Galloway <bjgalloway@bellsouth.net>
Penney Farms, FL USA - Monday, December 31, 2007 2:49 PM CST

Hope you guys had a great time at the Candlelighter's Tree lighting ceremony. I wish we could have made it. Have a great Christmas.
Cyndi Lyons (Owen's Mom) <superowenrules@yahoo.com>
Elkhorn, WI - Thursday, December 13, 2007 10:34 AM CST

Hi Lara,

I have enjoyed reading your entries and "catching up" with Nicholas and the rest of the family. I am glad he is doing so well!

Thank you a million times over for advocating for our little girl with your US senators and congress person. I am truly grateful. It is humbling to know that someone I have never met has done such a wonderful thing for me!

Sincerely,
Kathy (Keegan and Izzie's mom)
Kathy Morrison <kathykron@yahoo.com>
Murphy, TX - Tuesday, October 16, 2007 5:47 PM CDT

My dears - It seems no matter what goes on in the world, your world must be focused on Nicholas, and your fantastic ability to give Max and Camille the attention they require is amazing. In fact, YOU are amazing. You live with tension every day all day and yet you seem to enjoy life. I'm pleased that there are prayers going up for all of you. You are in mine.

Auntie Betty <bjgalloway@bellsouth.net>
Penney Farms, FL USA - Tuesday, September 18, 2007 8:38 AM CDT

Hi Sweethearts - I just read the newest entry you wrote, Lara, and can't imagine how anxious these days must be for you. However, it seems to me, reading your account of your various medical visits, that you have some very good specialists monitoring that little fellow. It also seems that you will be spending a lot of time helping the doctors to figure things out. I will be praying for all of you that whatever the diagnoses are, the problems can be treated without too much trauma to any of you.

I love you... Auntie Betty
Betty-Jane Galloway <bjgalloway@bellsouth.net>
Penney Farms, Florida USA - Sunday, July 1, 2007 3:39 PM CDT

Hi Lara,

I haven't checked in near as much as I would like. What a scary incident with Nicholas? So confusing. I have read much about seizures as an after effect of ATRT. Has Nicholas had a recent MRI? I need to "catch up" on your entries. I hope all else is well. How are the kids? I'll send you an e-mail and poke more questions. It's terribly late and my kids are still up so I'd better put my "good Mom" hat back on and put them to bed.

I'll be sending you an e-mail,

Renee
Renee Bell <reneewattlesbell@comcast.net>
west Linn, oR - Tuesday, June 26, 2007 2:20 AM CDT

I sure wish our hospital used a pain free approach. Owen just screams and screams, which makes it harder. I guess I should be grateful that he only has to have it done every two months. Well I hope they get some answers for you. Waiting is the hardest part. Well hope you guys have a great weekend.
Take Care,
Cyndi Lyons (Owen's mom)
www.caringbridge.org/visit/owenlyons
Cyndi Lyons <superowenrules@yahoo.com>
- Thursday, May 31, 2007 1:41 PM CDT

Nicholas,

You are such a cutie.I just wanted to thank your mommy for stopping by Bailey's website. We have met so many amazing families since this journey began over 3 years ago. Stay strong and remember Bailey's motto---Never Give Up!! Remember that God loves you so much and that he does answer our prayers. We will be praying for you and your family.

God bless,

Kathy and Bailey Rocha
Kathy Rocha <nevergiveupbr@msn.com>
- Friday, May 18, 2007 0:43 AM CDT

Hi Nicholas and Family
My name is Jenna and I came across Nicholas's site. He is an amazing boy and such a trooper. He has been through a lot and still has a beaming smile on his face, that shows what a fighter he is. He will be in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <fighter_smiley@yahoo.ca>
Kamloops, BC Canada - Thursday, May 17, 2007 11:44 AM CDT

Hi Garo, Lara, Camille, Max and Nicholas,
Diana told me yesterday about Nicholas' seizure but said the medicine should help. I'm glad to hear that and that everything is back to normal. Caroline had seizures and was on phenobarbetal (spelling?) for a few months as a newborn. Luckily, they have not returned so I think the medicine is a good idea. Our love to you all!
Love, Rick, Linda, Anna, Caroline and Sarah Cole
Linda Cole <lgarabediancole@sbcglobal.net>
Fresno, CA USA - Wednesday, May 9, 2007 0:35 AM CDT

I'm glad to hear that they found out what was wrong. It's great that he wasn't scared for the ambulance ride I bet he thought it was pretty cool. We will be thinking of you guys next week for his MRI, I'm sure everything will be great. Well hang in there and have a nice week,
Take Care,
Cyndi Lyons (Owen's Mom)
www.caringbridge.org/visit/owenlyons

Cyndi Lyons <superowenrules@yahoo.com>
Elkhorn, WI - Tuesday, May 8, 2007 8:04 AM CDT

Hello Derderian's,

And a wonderful Happy Birthday to my special survivor! Well, actually, Happy Birthweek! I know how that goes around here. I've found it even more difficult to venture onto the Rhabdoid site lately but that won't stop me from checking back here. It's fun reading about your adventures.

Thinking of you,

Renee Bell and family
Renee BEll <reneewattlesbell@comcast.net>
West Linn, OR - Friday, April 20, 2007 11:27 AM CDT

Nicholas has a birthday tomorrow, as does my Luke, so I just wanted to say happy birthday! Hope you get to eat lots of cake and goodies.
Holli Bettenhausen <chrisb@nitechindustries.com>
Monroe, Ne us - Wednesday, April 18, 2007 9:35 PM CDT

Our daugther, Alaina, was diagnosed with an ATRT brain tumor last Nov. I would like to talk with you more about the treatment you received and see how it compares to Alaina's. You can visit our website at www.alainaatkins.com Thank you
Jerri Atkins

Jeff and Jerri Atkins <jeffjerriatkins@bellsouth.net>
Southside , AL USA - Wednesday, April 18, 2007 5:37 PM CDT

Hi
Glad you are settled. Nice to hear about all the new stuff in N's life. Hope it all goes well. Thanks for keeping a journal.

Juanita
Juanita Darsa <jdarsa@aol.com>
Manhattan Beach, CA United States - Wednesday, April 11, 2007 7:26 PM CDT

Hello Derderian's,
I hear it's unusually cold there this year. You should be ready for anything now! We're experiencing an adjustment as well here. It's been unusually wet here. Odd since it already rains almost daily for 9 months out of the year anyways? Our Daughter is getting married in Utah April 4th. Now I do feel old, but the little ones keep me young. Jameson turned 5 today (St. Patty's day-fitting for the irish lass).

I'm glad to hear the kids are happier in their new school. That's so important! I hope Garo's job is going smoothly (at least heading in that direction). Vince is working a lot with his new company that he started so I'm no longer too worried about making ends meet. (I used to think it was ends meat,, ha!)

I hope that last bout with the virus was it for the year. Poor Nicholas. Spring is round the corner. What trips do you have planned? My mind is racing just thinking of all the possibilities - ohh which reminds me, I need to remind Vince to buy a lottery ticked (hee hee).

Take care Derderians! Renee and family
Renee Bell <reneewattlesbell@comcast.net>
West Linn, OR - Saturday, March 17, 2007 4:41 PM CDT

Just stopping in to say hi. I'm glad to hear that he will wear the hearing aid now. It is probably a little weird for him at first but he'll get use to it and then forget he has it in. Glad you guys are having a good new year. Owen turns two in a little over a month. Where does the time go? Of yeah we were in the hospital for 9 months last year. Owen is doing great. We recieved his ribon from the Candlelighters tree. Hope you guys are staying warm it is freezing here to. Take care
Cyndi Lyons www.caringbridge.org/visit/owenlyons
Cyndi Lyons <owencyndirandy@yahoo.com>
Elkhorn, WI - Wednesday, February 7, 2007 7:41 AM CST

Hi Garo, Lara, Camille, Max, and Nicholas,
I really enjoyed our phone conversation last week. It was great catching up with you and that you're all happy with your new souroundings. We can't wait to come for a visit. Enjoy the rest of the new year!

Love,
Linda Cole and Family
Linda Cole <lgarabediancole@sbcglobal.net>
Fresno, Ca USA - Saturday, January 20, 2007 7:06 PM CST

Merry Christmas and a Happy and Healthy New Year. Hope you guys have some snow by now all of ours melted so we have a nice gray Christmas.
Take care,
Cyndi & Owen Lyons
www.caringbridge.org/visit/owenlyons
Cyndi Lyons <owencyndirandy@yahoo.com>
Elkhorn, WI - Monday, December 25, 2006 9:17 AM CST

Thanks for the beautiful Christmas card! You have the prettiest children! My card will be late, but it will get there. Merry Christmas and love from, The Bell's
Renee Bell <reneewattlesbell@comcast.net>
West Linn, OR - Tuesday, December 19, 2006 7:45 PM CST

Hello Lara and family,

I just wanted you to know that I caught myself up on your photo album and got to see lots of Historic landmarks as well as your super handsome adorable kids. I have to know the secret to getting them to be so photogenic. They look like they're actually cooperating and sitting still. Well, I just don't get it. I'll send you our photo christmas card and you'll see just how much "I don't get it". Your neighborhood sounds great and I'm a little envious. Our new neighborhood has virtually zero children and if you remember, our last place had children everywhere. We were spoiled. Maybe we should pack up and move there. I can't wait to see your Christmas day pics. I'll have to set up a Mac photo album. Have a wonderful Christmas!

Love, The Bell's
Renee Bell <reneewattlesbell@comcast.net>
West Linn, OR USA - Friday, December 15, 2006 10:28 AM CST

I wanted to say thank you for sending me a picture of Owens ribbon on the tree, you went out of your way for a stranger and I am thankful you were thinking of us while you guys were there. We are planning on going out there for next years ceremony. We will be thinking of you and hope you guys have a great holiday season, I saw that you guys haven't gotten any snow yet we got 14 inches last Friday Owen is to small to play in it and I think he is a little scared of it. Thanks again, I will be checking in on you guys, Merry Christmas. www.caringbridge.org/visit/owenlyons
Cyndi Lyons <owencyndirandy@yahoo.com>
Elkhorn, WI - Sunday, December 10, 2006 9:45 AM CST

Hi everyone. I love the picture on the website, what a little ham. Just wanted to stop in and say hello. As you know the holidays are quickly approaching and I don't know if I will get back here again, so here is an early Holiday Greeting. Here's to continued health of Nicholas. Take Care
Holli Bettenhausen <chrisb@nitechindustries.com>
Monroe, Ne us - Tuesday, November 7, 2006 8:09 AM CST

I'm sitting here (in Portland now) wondering how things are going. I feel like I'm in the middle of an unfinished book that just stopped in the middle. Will the Derderian's ever get out of the hotel....? Will the Derderian's find a house to buy.... or will they have to settle for a rental? Did the Derderian's find a new car or are they taking the bus? Help! I need the answers. I can imagine how overwhelmed you must be now that school started and you still aren't in your home. We were fortunate to have my brother's house here in Portland. It's empty so he let us stay in it for a couple of months. We made an offer on a house that was accepted yesterday, so we should be in our own house soon. You know what else is so eerily similar to your situation...we are shopping for a new car. All we need is the hotel-right? I really do hope this finds you on your way to moving into a house and in a really good school district! I'll keep checking in to see if there are any new updates. :) Renee
Renee Bell <reneewattlesbell@comcast.net>
West Linn, OR - Saturday, September 30, 2006 0:13 AM CDT

Well, it's late but here I find myself at the computer as usual. I just had to drop you a line when I read about the car! I hope you didn't really like it and that what you really wanted was for something to land on it and total it so that you could buy a new one. I totaled a car once, but I was in it. I hope you can get out of that puney space soon and stretch your legs in a beautiful home.
:) Renee

P.S. We're right there with you, and I really mean it. We just put our house up and it already sold with a cash offer and they want to move in next week (and we just got back from Oregon 3 days ago). So here we sit trying to figure out how we're going to pack up this big house in 2 uhauls and arrive in Portland with no where to go??
Renee Bell <reneewattlesbell@comcast.net>
PG (for 1 more week), UT USA - Tuesday, August 15, 2006 11:36 PM CDT

Where was my head when I was reading that you were moving? Good Luck, can't wait to here an update on how you are doing with the move.
Holli Bettenhausen <chrisb@nitechindustries.com>
Monroe, NE US - Tuesday, August 8, 2006 9:16 AM CDT

It's August 1st and you should be in Virginia. I hope your move went smoothly and your house in Boise sells quickly! Our house goes on the market tomorrow as well and we're off to Oregon in the morning.

Keep in touch,

Renee
Renee Bell <reneewattlesbell@comcast.net>
PG (at the moment), UT USA - Wednesday, August 2, 2006 0:24 AM CDT

I'm sad to hear you are moving but having done so much moving ourselves, I can relate to the adventure and excitement of a new locale. It just is harder with kids as there are more people to say goodbye to, especially with Nicholas. Tell Camille and Max, Happy Belated Birthdays. July is a busy birthday month for us too, mine was earlier in the month. Good luck with the move. Keep in touch.
Jeanette <boysrunning@msn.com>
Boise, - Sunday, July 30, 2006 0:37 AM CDT

I was SO thrilled to read that we are going to be one of the 'pluses' when you move nearer to us. We have been talking about the fact that Virginia is not too far and will look forward to seeing you all again. I will pray that your visit with the Oncologist goes well. Love you all.
Auntie Betty
Penney Farms, FL USA - Wednesday, July 26, 2006 7:06 PM CDT

Oh Boy! It's been a while. I need to read some of your past entries to catch up. My Brother, Kevin, and Hanna moved to LA. That's where she grew up. They just had to get away and somehow, start anew. She's quite depressed. I can only imagine. Once a baby to hold and now empty arms. I cry myself when I think about it. They finally got little Dexter's head stone. I'll have to shoot you an e-mail with a picture of it. It's a bench with his picture in the middle. You sound pretty busy with your early rising. Did you forget that it was summer? The kids are amazing! Well, I'm going to catch up on your journal entries.

Keep making memories :) Renee
Renee <reneewattlesbell@comcast.net>
PG, UT USA - Tuesday, July 4, 2006 2:00 AM CDT

What a beautiful picture of the kids, I wish I could get some updates on Erins site, I'll have to keep working on that. Do you have any suggestions on where to visit in Idaho, we are trying to come up with a state to visit, its between western Wyoming, Idaho, or Colorado.-Take Care-Holli Bettenhausen
Holli Bettenhausen <chrisb@nitechindustries.com>
Monroe, Ne US - Tuesday, June 27, 2006 8:46 PM CDT

I'm praying that you and your family will enjoy the 3 day weekend. Let's all take a moment to pray for our troops, both past and present...our freedom isn't free. Too many have paid a very high price.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Friday, May 26, 2006 9:45 PM CDT

What a very rude woman! I had an experience once in a grocery store and old man(70's or so) came up to me and Erin(who was riding in the cart) and asked me what had happened to her nose. She had a tiny little cut on her nostril from an oxygen tube. This he saw above her bald head with a huge scar going up the back, a bump on her front right part of her skull from a "ohmya(sp)" which is like a shunt, and her right eye which was still turned in, oh and a feeding tube. I still don't know if he was trying to considerate by not asking about all the other stuff,yet still wanting to know about her or if he was legally blind. Just thought I would share that with you, nothing likewhat you encountered, but nonetheless. I hope you told her off.
Holli Bettenhausen <chrisb@nitechindustries.com>
columbus, Ne. USA - Thursday, May 25, 2006 3:58 PM CDT

May your Mother's Day be very blessed.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Tuesday, May 9, 2006 7:58 PM CDT

HI Lara

I have been out the loop for a while, we have been busy finishing our basement off, I need to read your past journal entries, but I just wanted to wish Nicholas a belated birthday, he shares the same day with my Luke(April 19th)
Holli Bettenhausen <chrisb@nitechindustries.com>
columbus, NE USA - Monday, May 1, 2006 1:24 PM CDT

Wow Lara, I don't think I can top that! that's such an awful thing to deal with. Actually our basement partially flooded with (sewage) a few months ago so I guess I can relate a little. I'm sure you have some sort of deductible to deal with too, with the insurance company. I hope everything gets fixed fast! Oh, and our dog got dog-napped a couple of days ago, but still, I would never want my house flooded like what you're having to deal with right now. If you need a place to stay...(ha ha) we're here for you!

Sending dry thoughts so that you can return those fans that are drying out your carpet and sheet rock! Renee :)
Renee <reneewattlesbell@comcast.net>
Pleasant Grove, UT USA - Tuesday, March 28, 2006 5:29 PM CST

Oh, you poor things...all that water (and WORK, before you are back to square one). At 80 years of age, I can recall various situations similar to that which I would rather have forgotten. If you can keep this journal, someday when you reread it, you will chuckle. Thank heaven for insurance reimbursements!
Auntie Betty <bjalloway@bellsouth.net>
- Friday, March 24, 2006 4:17 PM CST

Oh my! That sure sounds like the "Trip Of All Trips"!! What fun. I can't wait to see the pics! Nicholas already looks bigger from when we saw him last October! Wow!

My brother and his wife are doing ok. Kevin has a job, well actually 2 jobs that keep him busy 7 days a week. Hanna window shops a lot during the day and just kind of wanders around without her "mother" title anymore. I think she feels lost. I, on the other hand, am doing good and just soaking up every moment with my boys watching them grow. I worry about my sister-in-law pretty much every day just wondering how she is coping. I guess I really don't know what I would do if suddenly I wasn't a "Mother" anymore? I count my blessings.

We too are going to Visit Disney in April. We did the Disney World trip last August and We'll try Disney Land next month. We're driving (ugh). But it's nice that it's not too far that driving would be out of the question. Wow, now that I look at how long my entry is, I realize that I should have just e-mailed you. I'll stop for now and save the rest for an e-mail. Give the kids big hugs for me (and a kiss to Nicholas)

Love, The Bell's
Renee Bell <reneewattlesbell@comcast.net>
Pleasant Grove, UT USA - Thursday, March 9, 2006 9:00 PM CST

May your Valentine's Day be very blessed.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Saturday, February 11, 2006 11:21 PM CST

Hi I just want you to know that my son has also rhabdoittumor but in his brain he is in hospital since five weeks sorry for by brooken englisch i am from germany.
I hope to find somebody who is in the same situation.
The doctors say to me my son has under 5 pozent to allive
I am so sad Its like I am going thru Hell. How can i Hope he is only 2 Month old. Please contact me it could help somehow. Diallo
Nuran Diallo <www.diallomalik@aol.com>
Krefeld, germany - Saturday, January 28, 2006 2:23 AM CST

Dear Ones - I was happy that your update seemed positive, and I admire you for giving so much of yourself in spending time with the children, and especially Nicki, since he's home alone with you now. It does reap many rewards. Love you... Auntie Betty
Betty Galloway <bjgalloway@bellsouth.net>
Penney Farms, FL USA - Wednesday, January 25, 2006 4:45 PM CST

Lara, I have been good lately about Dexter being gone but when I read your entry the other day, well, I started the crying thing again. You are so sweet. I'm so glad your fiddle presentation went well. Was it the fiddle? You are a brave woman. I could never have performed in front of 10 people let alone 200! Thank you for thinking of Dexter. He just feels so gone and out of our lives that it makes me shiver with sadness. He can only live on in our hearts for now. I'm not really sure how my brother and wife are doing. I call and I Instant Message them and they seem to not want contact. That makes me sad or actually a little helpless feeling. I want things to be all better but they just can't be. I never thought Dexter would succumb, but somehow, he did. It still is like a dream. Well, just looking at those cute sweet cheeks of Saint Nicholas makes me smile. I do hold out hope and prayers that his gait and spine problems just go away - like growing out of it. Can it be that easy? I'll keep praying for it since miracles still do happen. We don't always get the miracles that we want but we have to ask first. Tell Garo hello and hug the kids for us.

Love, Renee and Vince and kids
Renee Bell (from Dexter's Rhabdoid Angel page or www.caringbridge.org/ut/dexter )
Pleasant Grove, UT USA - Thursday, January 12, 2006 11:15 PM CST

Thanks for updating, sounds like some smooth sailing lately, good for you guys.Take Care-Holli
Holli Bettenhausen <chrisb@nitechindustries.com>
Columbus, Ne US - Wednesday, January 11, 2006 9:55 AM CST

Merry Christmas! Thats all!-Holli
Holli Bettenhausen <chrisb@nitechindustries.com>
Columbus, Ne US - Wednesday, December 21, 2005 9:29 PM CST

Merry Christmas Derderian's! We received your beautiful Christmas card with the most gorgeous children on it. They are all so beautiful and handsome! I love it and the family update too. I'll have to get one out as soon as I can tackle the kids and "make" them pose for the camera. It always turns out as a disaster, but here we go again. Merry Christmas you all, Love the Bell's
Renee (from Dexter's www.rhabdoidkids.com page - angel page)
Pleasant Grove, UT USA - Monday, December 12, 2005 8:12 PM CST

For everything that happens to you, you sure are on the ball about updating the website.
About what you wrote in your update...All I have to say is that when it rains it pours. Your family has been thru so much you think you could catch a break soon.-Holli
Holli Bettenhausen <chrisb@nitechindustries.com>
Columbus, Nebraska US - Thursday, December 8, 2005 10:33 AM CST

I'm praying that life will calm down a little so you can all enjoy the Christmas season.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Saturday, December 3, 2005 5:06 PM CST

Well, his picture's gone. I knew it would take my breath away when He was switched to the Angels side. I am comforted by seeing your Nicholas here. I hope your trip was filled with great memories! We have decided to make a big effort to do like your family does and go on more memory making trips! Love Renee and Family
Renee (from Dexter's www.rhabdoidkids.com page)
Pleasant Grove, UT - Monday, November 28, 2005 8:21 PM CST

Just thought I would stop by quick and wish you a Happy Thanksgiving, there is so much to be thankful for!!
Holli Bettenhausen <chrisb@nitechindustries.com>
Columbus, Ne. USA - Thursday, November 24, 2005 12:14 AM CST

Lara & Garo - What a sweet picture of the two boys. I hope things are going well and that you had good news from the Neurologist in Salt Lake City. Love you..Auntie Betty
Betty Galloway <bjgalloway@bellsouth.net>
Penney Farms, Florida USA - Saturday, November 19, 2005 1:21 PM CST

I love the updated look to your website, and what a sweet picture of the boys. Hope all is well, and stays that way for the holidays. Thinking of you often-Holli
Holli Bettenhausen <chrisb@nitechindustries.com>
Columbus, ne US - Wednesday, November 16, 2005 9:50 AM CST

Hello Nicholas two pictures up from ours,
I hope your trip was a great memory for you! I also hope you are feeling good and playing a ton!

Love,

Dexter's team
Renee (from Dexter's www.rhabdoidkids.com page)
PG, UT - Sunday, November 13, 2005 10:47 AM CST

oh wow that is so neat you guys got to meet i remember when i met dawn and darrell anderson (chaytons parents) and tom and jennifer and eli(big bens parents and brother) all wonderful people and an unforgettable experience just knowing you are talking to someone who can truly say i know what you mean !! praying for all rhabdiod children to beat this monster
sherri & angel bradley <redneckmom1177@hotmail.com>
alderson, wv - Thursday, November 3, 2005 10:10 PM CST

Martha has kept us updated on some of the events concerning Nicholas, and I have been praying for him. He looks so adorable and happy with that big smile in spite of all he has been through. I can't imagine how difficult it has been for you as parents to see all he has suffered. You certainly have done a good job keeping up with all the medical details and taking care of Nicholas as well as Camille and Max. I have been reading back entries in the Journal, and it is almost unbelievable the things that keep happening. May God continue to give you strength to meet all the challenges.
Gwen Love <cglghl@knology.net>
Montgomery, AL USA - Wednesday, November 2, 2005 4:08 PM CST

Lara and Garo,

Ok, I finally found your photo album link at the bottom of your page. I love it. Now I can see the whole family and all your adventures. You are such wonderful parents! That was easy to see right off when I met you Sunday. I think you should transfer to the Lehi Micron and we could be great friends! Nicholas is the cutest baby. Although, after hearing him speak, he seems much older to me now. His dimples are even cuter in person. I'm sorry about the uneventful Dr. appt. Saturday. I wish Dr. Walker had a solution. How disappointing! Keep researching. You might come up with the answer on your own. Take care of those beautiful kids! Love, Renee & Vince and Dexter's entire family!

(P.S. We will really have to get together and Vince and Garo can go fly fishing)
Renee (www.caringbridge.org/ut/dexter)
P.G., UT USA - Tuesday, November 1, 2005 5:29 PM CST

I found you through the Rhabdoid kids page, but I found that through a Caring Bridge site of a little boy who also had a Rhabdoid tumor. It is so nice to read about a child who is doing well despite certain "after effects." But what a scary situation. And then to have them suggest that it was a result of child neglect or worse -- how awful! After all you've done to get him this far! Please know that I am praying for Nicholas.
Tracy Stanley
Ramsey, MN - Wednesday, October 19, 2005 12:23 AM CDT

I sure hope Nicholas has been doing well ever since that terrifying episode! Have you found out more about if it could have been latent chemo effects! It does sound like something that can happen. I hope things are calm there and that all is well. Is Nicholas a bit of a ham? I see a very animated comedian sort of look peeking out of that elmo costume! Praying for you Nicholas! Renee and the Dexter team.
Renee (from Dexter's Rhabdoid kids page)
Pleasant Grove, UT USA - Tuesday, October 18, 2005 4:50 PM CDT

Wow! What a scary, strange situation! I'm so glad that Nicholas is okay!
Kathy Morrison (Keegan's mom) <kathykron@yahoo.com>
Murphy, TX - Monday, October 17, 2005 4:46 PM CDT

I just read your update. How scary was that!!! I am so sorry you had to experience it. Then to not know for sure what caused it. My thoughts are with your family. Take Care-Holli
Holli Bettenhausen <chrisb@nitechindustries.com>
Columbus, NE US - Monday, October 17, 2005 12:00 AM CDT

We are glad to hear Nicholas is doing better. Sorry you had to go through that.
Steph and Beth
- Monday, October 17, 2005 7:41 AM CDT

I am glad that nicholas is okay. I hate that your family had to go through such a scare and you didn't get any positive answers on why it happened. I will pray for him.
Liz Kelly <Liz2403kelly@yahoo.com>
hills, IA USA - Sunday, October 16, 2005 11:10 PM CDT

im so very sorry for you to have such a scare i hope they get it figured out soon give him a big ole kiss for me he is so adorable
www.caringbridge.org/wv/bradley
sherri and angel bradley <redneckmom1177@hotmail.com>
alderson, wv - Sunday, October 16, 2005 9:20 PM CDT

Yaaaaaaa for you! Nicholas has been blessed with a mom who will do what she knows is right, even if it makes waves. I salute you!
Stephanie and RachelJoy <mom2rj@comcast.net>
- Sunday, October 9, 2005 10:09 PM CDT

Just thinking about your family today, thought I would stop and say hi! Hope all is well.Take Care-Holli
Holli Bettenhausen <chrisb@nitechindustries.com>
Columbus, NE USA - Wednesday, October 5, 2005 8:33 AM CDT

Nicholas, you have the most wonderful kissy cheeks i've ever seen! Did you like that "house of fyling daggers"? Lara, does your husband work for Micron? You mentioned it so it got me thinking. Actually, the one in Lehi is close to where we live. Let me know if you need a pick up from the airport or a bed to sleep in or what ever. I hope you find out what is causing Nicholas pain. It's awful knowing your baby is in pain and you can't figure out why.
Renee (from Dexter's www.rhabdoidkids.com page)
PG, UT - Wednesday, September 28, 2005 10:54 AM CDT

You are such a cutie nicholas. You are so strong too.

I know you have alot of questions, I will be praying that you start getting some answers.

Tyler Moen's Aunt
www.caringbridge.org/visit/tylermoen
Liz Kelly <liz2403kelly@yahoo.com>
Hills, ia United States - Tuesday, September 20, 2005 2:30 AM CDT

Dear Lara, Nicholas, and family,
I'm thinking of you as you try to figure out what's going on. Nicholas, you are such a strong, brave (not to mention extremely cute) boy! Hang in there! You may not see the light at the end of the tunnel yet, but I'm sure it's there!
Kathy Morrison (Keegan's mom) <kathykron@yahoo.com>
Murphy, TX - Friday, September 16, 2005 9:29 AM CDT

Wow, thats alot to swallow, I hope you find the courage for another hospital stay. I am dreading having to stay in the hospital, just to have my baby. All those familiar surroundings, its difficult I know. I will be praying for all of you. Hope all goes well when surgery does roll around. Take Care-Holli
Holli Bettenhausen <chrisb@nitechindustries.com>
Columbus, NE US - Saturday, September 3, 2005 5:14 PM CDT

Hi Nicholas,
Thinking of you!
Bernadette
Bernadette Soccorsi Long <bernadette@soccorsi.co.uk>
Morgantown, WV 26508 - Tuesday, August 30, 2005 7:58 PM CDT

Lara, Let me know if you need anything if you do make a trip out to SLC. We live in Pleasant Grove (about 30-40 from PCMC, near Alpine). So if you need accomodations, we would love to accomodate! I hope you find answers, that is key. Renee
Renee (from Dexter's www.rhabdoidkids.com page)
PG, UT - Wednesday, August 24, 2005 11:08 AM CDT

Hi guys, I just read your update, so what does that mean? does he need surgery on his spine now? You got me worried, yet you sound so calm and sure of everything. Maybe I misread what you wrote, if I did disregard the mother-hen concern.Take care-Holli Bettenhausen
Holli Bettenhausen <chrisb@nitechindustries.com>
Columbus, NE US - Wednesday, August 10, 2005 8:53 AM CDT

Nicholas, You are in my thoughts and prayers. You are such an adorable boy.
Elizabeth Kelly <liz2403kelly@yahoo.com>
Hills, IA 52235 - Sunday, August 7, 2005 3:18 PM CDT

Dear Nicky,
You are adorable! I'm praying for you and your family.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Monday, July 25, 2005 8:36 PM CDT

HEY!!! Just a shout out to let you know that we are thinking about you and to also thank you for the giggle... The Carseat King! You have a smart little man on your hands! Glad to hear things are going well and can't wait to see his new glasses. Take care!
Dawn Anderson <mowgliswar@yahoo.com>
Winthrop, MN - Sunday, June 19, 2005 9:58 PM CDT

once again, you made me cry. I loved the poem. It was fitting. I hope you find the answers you need for nicholas and that he can and will overcome. Sincerely, Renee
Renee (from Dexter's www.rhabdoidkids.com page)
Pleasant Grove, UT - Monday, May 30, 2005 0:32 AM CDT

Lara, I actually found that poem on another childs website. Of course I wouldn't mind. Thanks for visiting Erins website. Have a good/safe Memorial weekend!-The Bettenhausens
Holli Bettenhausen <chrisb@nitechindustries.com>
Columbus, NE US - Tuesday, May 24, 2005 7:57 AM CDT

Lara, I am hoping that MRI turned out crystal clear/clean! Nicholas' picture on the front page is so cute it made my heart melt! (What a little carpenter). Renee
Renee <reneewattlesbell@comcast.net>
PG, UT - Friday, May 20, 2005 12:35 AM CDT

Hi Nicholas,
You are so adorable. I am praying for you sweetie pie!
God Bless,
Bernadette
Bernadette Soccorsi Long <bernadette@soccorsi.co.uk>
Morgantown, WV 26508 - Wednesday, May 18, 2005 7:32 PM CDT

I just wanted to say what a cute picture on the home page. Love the boots!! Keep at those doctors, you know your child best and its better to be safe than sorry. Holli B
Holli Bettenhausen <chrisb@nitechindustries.com>
Columbus, NE USA - Monday, May 16, 2005 3:37 PM CDT

Lara, You deserve that piece of mind. You have the right to demand an MRI. They can not refuse you. Like Dawn said, "You are your child's advocate". You know better, in most instances, than even the doctors. Sincerely, Renee
Renee (www.caringbridge.org/ut/dexter)
PG, UT - Tuesday, May 10, 2005 2:12 PM CDT

You are writing just fine! It's what is in your heart. I personally don't think you are over-reacting, we are our children's advocates and there is certainly no harm in putting your mind at ease! Stay strong, you are doing what is right when you are following your heart! Happy Belated Mother's Day!
Dawn Anderson <mowgliswar@yahoo.com>
Winthrop, MN - Monday, May 9, 2005 5:16 PM CDT

Hello Nicholas
We just stopped by to tell you that we are sending you hugs and kisses and wishes for your continued growth and health. We look forward to hearing good news about your progress in the future too!

Love
The Leschen and Sachs families
Sandra Leschen <sandy412@juno.com>
- Thursday, April 28, 2005 11:46 AM CDT

Hello Nicholas
I wanted to tell you, I love the picture of you and your Teddy Bear. I must have had a teddy bear when I was a little boy but I don't remember. I wish my mother would have saved him for me. Your teddy bear looks like the "best friend" kind of teddy bear.
Dave <Dave@RhabdoidKids.com>
Mpls, MN. US of A - Tuesday, April 26, 2005 11:02 AM CDT

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