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Get my banner code or create your own banner >   This site was created to keep Breanna's family and friends updated on her health. My name is BREANNA CORINNE ARTHURS I am better know as BREE I was born on September 19, 2002, weighing in at 5 lbs and 4 ounces, a beautiful healthy baby. My mom is making this page for me ****************************************************************************** I was diagnosed with Krabbe disease on January 16, 2004. I started to show symptoms early around 4 weeks of age. however, the hospital was not too concerned but my mom was. Early symptoms include: difficulty with feedings, tight muscles, excessive crying that can last days, weeks or months, I felt yuchy and cried for around 6 months. This disease is going to progress until my Bree can no longer swallow, seizures, infections, blindness, deafness, and lose all abilities to move. This disease affects the Central and peripheral nervous systems, which involves movement, breathing, Heart, body temperture. Krabbe disease is a form of Leukodystrophy a neurodegenerative disease. Until recently the only treatment options were limited to symptom management and palliative care. There is no cure but if diagnosed early enough there is now a new treatment. Cord Blood Transplant is the only hope for children with Krabbe disease. However most times once a child starts to show symptoms it is to advanced for the treatment, That is why newborn screening is so important. Adding this test to newborn screening WILL save my friends lives. HELP ME SAVE MY FRIENDS LIVES!!!!!!!! This disease affects 1 in every 100,000 births. Also 1 in 125 of us carry this horrible disease, it takes 2 carriers to have an affected baby. This disease is a terminal illness with a life expectancy of 8-16 months of age without the transplant. Our little Angel fought so hard she is was just so beautiful, pure of sin, a pure heart. Our angel went to Heaven on January 18, 2005. She is so very missed. God saw you getting tired when a cure was not to be So He put his arms around you and whispered, "Come to me." You didn't deserve what you went through and so he gave you rest God's garden must be beautiful He only takes the best And when he saw you sleeping so peaceful, free from pain We could not wish you back to suffer that again It broke our hearts to lose you but you did not go alone for part of our hearts went with you The day God took you home Bree is an amazing little girl. Breanna was an angel here on earth and now an angel in Heaven.   THANKYOU SO MUCH QUILT OF LOVE YOU ALL DID AN AMAZING JOB...Breanna's Memorial Quilt View Breanna's QUILT OF LOVE  Breanna's smile quilt is ready for everyone to see  Here are a few of our favourite links for information on Krabbe disease just click on the picture!!!   Our little princess "I would rather have had 30 seconds of wonderful, than a lifetime of nothing special."  HERE ARE A FEW PICTURES OF BREE!!       NOW HERE ARE A FEW PICTURES OF SELENA AND SAMANTHA!!     HERE ARE A FEW OF NATE!!          *HUGS* TOTAL! give Breanna more *HUGS* Get hugs of your own please sign our guestbook and let us know you were here We love hereing from you. Journal Thursday, June 5, 2008 7:44 PM CDT Hi everyone!! Hospital Information:
Links: http://www.krabbes.com krabbe kids |
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E-mail Author: barthun628@rogers.com |
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