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Believing in Miracles 
Fully Relying On God
Taylor is outfielder
for the California LongBeach DirtBags and Trenton 2nd Baseman for the
New York Yankees
Trenty is our New 2nd Baseman!!!
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Trenton is currently a very sweet "5"-year old little boy who has had lots of family and friends praying for and loving him for 4 years now. Trenton was diagnosed on March 18, 2005, (5 days after his '1' year birthday) with High Risk, Stage IV Neuroblastoma, N-MYC Amplified Cancer. Neuroblastoma, a rare cancer found mostly in children under age 10, is a form of cancer that occurs in infants and children but is rarely found in children older than 10 years. Neuroblastoma is by far the most common cancer in infants and the third most common type of cancer in children. There are approximately 650 new cases of neuroblastoma each year. Since Trenton's diagnosis, he began with 5 rounds of chemotherapy immediately. After the third round of Chemo, Trenton's tumors disappeared miraculously; therefore he did not have to endure surgery to have the masses removed. Miracle #1 :)
This was only the beginning of Gods work and His miracles in our son......he's a living testament today - and we will remind him of this every day as he grows into a young man!
Trenton's Bone Marrow also became free of cancer at that point and we were advised by ALL Oncology doctors (specifically Dr. Woods) to move forward with the total protocol, not to stop for a minute, as this cancer is a Beast and has a 70% chance track record of relapse. Therefore, we journeyed on………Following 2 more rounds of chemo, they harvested his own cells to save for TWO contiguous Bone Marrow Transplants that would be forthcoming in the fall of 2005. Between Chemo and harvesting, Trenton had many viruses encounter his body with low blood counts and was in the hospital over a period of 5 month thru spring and summer, and then we were finally home for a couple of weeks.
Finally, his body recovered enough to conquer on, to begin bone marrow transplant #1 in August 2005. Trenton endured the first one, with the hardest battle and toughest fight for another 37 days in hospital. There were 7 grueling days that we thought we would lose Trenton, as he struggled to breathe and bring his fight up to fighting order, we held him in our arms day and night hardly letting go. He made it, with the prayers of faith, love and hope.
We then came home for couple weeks had pictures made for Christmas cards, loved his brother lots and family time and journeyed on to be readmitted for #2 BMT at Egleston Children's Hospital once again under the best of carefor another 33 days. He did so much better this round. In addition to the other long weeks and months of hospital stays, these were the worst. EACH bone marrow transplant procedure, completing them both the end of October 2005. Praise the Lord. Trenton rested and recuperated once again at home for about a month and then started radiation in December for 21 days, and he was our hero all the way thru (again, under the best of care)! Put to sleep during every single procedure, not to mention the 17 different surgeries for placement of infected port lines and picc lines - All the doctors and nurses blessed us with such love and support (so many we claim family :) we LOVE them all for so many of things they taught us and loved us each day, and will always keep them close in our hearts. The doctors are the best at Scottish, and Scottish Aflac Clinic, as well as Egleston BMT floor, Egleston Clinic, and Emory radiation.
Trenton's final protocol was Oral Chemo which he began on January 10th, 2006. The oral Chemo requires 14 days on and 14 days off, twice a day for 6 months. We just completed the end of everything June 11th 2006. Trenton has been N.E.D. (no evidence of disease) and We just want to thank everyone for the support we have had these past 4 years. It’s amazing to me how much love is in this world, and when you think of a bad day or bad people, please think of us and how much love and support comes from ALL families when touched with the sickness of children.
When you pull together all the love for one child with cancer or any sickness in a child………just think of all the love we can pull together with the many children with cancer in the world.....the numbers are shocking……..that is what our family has learned……..we will support and fight and speak the word of faith, love and hope and the journey we can end with children of cancer, if WE ALL pull together………. Please feel free to sign Trenton's journey and read his journal and battle with this horrific disease called Neuroblastoma, the day our families lives changed forever…. WE will PAY IT FORWARD for the rest of our days in the Kindred home www.caringbridge.org/ga/trentonsjourney
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Please Light a Candle For Trenton
Turn your Speakers on
Double click on the 4 Candles link below....
Wait for the first 3 candles to go out then watch the 4th candle...
4 Candles
Visit Trenton's Personal Page at
www.TrentonsJourney.com
Journal
Thursday, May 7, 2009 3:28 PM CDT Trenton's Scans are CLEAR!!!!
Praise the Lord for our CONTINUED MIRACLE!!!
Whew, we just got home. Trenton is just worn out he says! :) (picture attached) :(
I was so excited, I had to immediately email all of you that's been putting up with us the past month anticipating this ScanXiety day!!
So much GREAT NEWS! Some of you I have already emailed or Text'd us as we were leaving CHOA and know the ALL CLEAR news, but wanted to say, we have more news and we are so excited.
In fact, I told my friends at the office that Taylor, Greg and I were all cryin' over Trenton with the doctor, with happy tears at this one. It just never gets easier for us as a family, actually so much harder; but here's some more good peaceful news we weren't anticipating to hear…………..
Dr. Rapkin spent so much with us about details and what happens next. ……
As Trenton's been doing 6 month scans for the past 2 years since protocol ended…, well, ….believe it or not, he has one more 6 month scan in November 2009, which also includes Heart scans and Hearing check. He starts Survivorship Clinic with Dr. Wasalewski in August this summer. (this includes years of different kinds of tests and checks). THEN following November 09' All Clear scans :), we won't see Trenton's Oncologist Dr. Rapkin and Scans until 1-year later, making November 2010 our last scan and Oncology Dr. Rapkin visit!! Can you believe it! That date makes Trenton at 5 years cancer free (hoping, praying and praising - BLESSED). :)
Little nervous to say the least, living with this cancer family group for so long, hard to break away from Scans & Dr. Rapkin as parents he said, but we need toooooo :) What great news is that!!
Trenton will only go to survivorship clinic from that moment on, probably until age 21 or longer. Survivorship is a MUST when you make it this far and how much he's endured; especially in his early years, as "they look for the bad things that the cancer treatment does to the body in following years" :( WE ARE NOT THINKING OF THOSE THINGS RIGHT NOW AND WON'T.
In fact, THERE ARE so many positives we are focusing on in today's visit, we are truly blessed!!!!
Last positive, then I will let y'all go…………………….Trenton's blood counts were so NORMAL (we didn't think that one was ever possible, but they are)…………and all his chemistries added up to normal and in-sync, everything was in-tune to NORMAL. (want me to say normal one more time :-)
So not only Clear Scans, but all the other stuff with it that makes for a GREAT day! In the midst of this journey, we know what a great day truly is!
Love to all of you for praying for our sweet boy!
Believing always in Miracles
Ginger & Family
Read Journal History
Hospital Information: Patient Room: Trenton's HOME SWEET HOME HOME SWEET HOME
1725 Lazy River Lane
Atlanta, GA , 30350
EMAIL: 2kindred@bellsouth.net
Links: http://www.supportcancerkids.org/ Please order ChildhoodCancer Car Tag!!!!
http://www.curechildhoodcancer.org/home.htm CURE Childhood Cancer
http://www.trentonsjourney.com Trenton's original website
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