|
! - MADISON RYLEE - ! 
HOLY MOLEY! SAKES ALIVE! NO MORE CHEMO! AFTER MAY 20, 2005!!
WELCOME TO MADIE'S WEB PAGE!
I keep it updated so that my friends and my family will know what is happening in my life after being diagnosed with "pre-B" Acute Lymphoblastic Leukemia (ALL) on March 21, 2003. It was just a few weeks after my 4th Birthday! I am now off all Chemotherapy!
>
Once upon a time, in a place that is no more, I lived without Cancer, before I turned four. Now I am six and almost to seven. I talk about dying and going to Heaven. Lots of times it’s hard and I can’t keep things straight. My mom says it’s the chemo and all the medicine I ate. I worry too much and wake up at night screaming. Mostly I’m crying because I think my mom’s leaving. The worst thing is that I don’t know what I did. How come I got Cancer when I’m just a little kid?
How come?
Click here for my mom's page where she writes about me! She doesn't have the time to update as much, but the stories are really great!
==========***========== **ATTENTION!!--Updated November 16, 2008!! WANT TO MAKE A DIFFERENCE IN THE FIGHT AGAINST CHILDHOOD CANCER?
===========***==========
I'm calling all you 'Angels' out there! Do you want to help one of us Sweetie Cancer Children's fight this terrible disease this Christmas Season? Well guess what, YOU CAN!! All you need to do is go by the website for the Cancer Warriors and become a Christmas! I can't even begin to tell you how totally awesome, fantastical, superfantabulous it feels to have a Christmas Angel! Back when I was on chemo, it was the greatest thing to ever happen to me. That is something that I will, not ever, forget in my whole wide world life!
> Would you like to “Host and Elf” this holiday? Right here in your own home?!! And, help find a CURE for Childhood Cancer? Of course you can! Just go to a Elves From Catie and you can get very own Elf while donating money to help find a cure for Childhood Cancer! You will be surprised how much difference you can make!
Journal
Tuesday, December 30, 2008 3:00 PM CST HAPPY NEW YEAR!!!
Hi Everybody!
I can't believe it is almost a whole year that has gone by again! Wow! Where does the time go???!!!
Okay, so I wanted to post an update on my visit to the Orthopedic doctor who I saw yesterday afternoon. It was a very short visit, but they are REALLY BUSY and it took about two hours of waiting and waiting!
Well, it seems that my mom got the information wrong about my leg. The doctor wanted the bone scan to be sure there is nothing wrong with my bones! He said the scan was negative for any type of inflammation or abnormalities other than my sciolosis.
What he did say was that the bone scan confirms that what is on the knee xray is 'soft tissue' and that I do have the 'non-ossifying fibroma tumors' growing on my knee and leg.
Which kinda stinks.
So. The plan is to call his office the next time I hurt myself. The plan is to re-xray my knee in six months to see what's happening to it with the fibroma tumors. The plan is to re-xray my back in six months to see what's happening to my sciolosis. The plan is to call his office if the pain in my knee gets worser than it is right now. (which it is a little better!) He said it was okay to take tylenol and ibuprofen for the pain, but if it gets to be every day that I need something to help me, then I have to call his office and come back for another visit.
The good news is that I can do anything that I want to do unless it starts hurting! So, that is supergreat!
Well, I have to run! We are heading up to Bethlehem to see my Aunt Rhonda and my Uncle Butch. We have made some chili and some butter peas with cornbread so they have lots of stuff to munch on!
Thank you guys for all your thoughts and prayers while I get through this stupid Cancer journey all in one piece! You guys all have Angel Wings coming for sure!
Talk to you soon! Your friend, Madie Rylee
Read Journal History
Hospital Information: Patient Room: At Home Now! Children's Healthcare of Atlanta-Scottish Rite Campus 1001 Johnson Ferry Road, NE Atlanta, GA 30342 Mom Cell - (404) 428-8964
Links: http://www.active.com/donate/rallyathletes/madieice Madie's Fundraising Webpage for Rally Foundation for Childhood Cancer Research! http://www.mycampsunshine.com/ Camp Sunshine! Here in Georgia, I go to the Camp Sunshine House!
|
|