Kylie Dru Barry

Kylie and Daddy at her 2009 Dance Recital!
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Welcome to Kylie's corner! The place to get the most recent update on Kylie's health. The purpose of this forum is to keep everyone as informed as possible so that the Barry's are able to spend less time on the phone and more time with Kylie.

Drew and Raquel are so appreciative and overwhelmed by the love and support everyone has shown. Please continue to pray!

Kylie had been ill on and off for months before she was diagnosed. She continued to spike high fevers for seemingly no reason and had been in and out of the doctor's office for months without many answers. Around the beginning of October 2004, Kylie was admitted to the hospital after another extended illness. Doctor's felt that this illness may have been caused by a condition called celiac disease.

The doctors performed an endoscopy to obtain a biopsy to test for celiac disease. During this procedure, Kylie's doctor found a large mass in her abdomen.

On October 7th, 2004 a tumor, about the size of a softball, was found in Kylie's abdomen and she was diagnosed with Neuroblastoma. The tumor was connected to Kylie's adrenal gland and wrapped around several major arteries. A biopsy of the tumor revealed that the cancer is N-MYC amplified. This means Kylie's cancer is considered "unfavorable" and aggressive.

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Please help us raise money so that researchers may have the funds to provide new treatments for Neuroblastoma and save lives:

http://www.getetched.com/band-of-parents/
http://www.iGive.com/BandofParents
http://www.cafepress.com/bandofparents

Journal

Sunday, June 28, 2009 6:53 AM CDT

Once again we're praising God on this beautiful day for keeping Kylie cancer free! She had an MRI of the liver on Thursday,along with several blood and urine tests. Friday consisted of an EKG, an ECHO and a visit with her long term follow up care doctor.

We then met the Neuroblastoma team doctors and the confirmed the final report that Kylie's MRI was completeley normal, only showing some scar tissue in her abomen from the major surgery she had in 2005. The people who performed the heart tests both told us they looked completely normal, but that they'd have to compare them to previous tests she's had to make sure there were no changes. And, as usual, it will be another week or 10 days before the urine test results will be back.

Then, it was at the end of our day at the hospital that was the most interest. They informed us that this will probably be the last scan Kylie receives!! Our favorite nurse (and now my friend) said that when they scheduled this week's test, the doctor specifically said "let's do just one more". This means that unless they decide otherwise and barring any problems Kylie could have that would cause them suspician, that she will never have another scan and only have blood and urine tests! Kylie was so happy at the thought of not needing any more IV's in her arms and she high fived me right away. I was more than excited because I knew that meant that the doctors felt comfortable with her having a low enough chance of relapse at this point that they could stop doing the scans. I can't tell you what a huge weight that lifted off my shoulders. Of couse, like Drew said, maybe we'll want her scaned, to ease our own minds, but the point is keeping the radition off their tiny bodies if it's not necessary. We'll have to keep our trust in God more than ever now.

Thank you for all of your prayers. We fly home later this morning and I can't wait to see my husband and my little red headed monster.

Have a blessed week. I pray that you too can feel the joy that I have in my heart right now! Please thank God with us, please continue to pray for Kylie's good health, the health of all others with cancer and a cure for ALL cancers.

love,
Raquel

Hospital Information:

The Barrys
1205 Jennifer Oaks Circle
Alpharetta, Ga 30004

Links:

E-mail Author: raquelbarry@comcast.net

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.