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Jimmy-Joe

Updates on our precious son Jimmy. (Jimmy is one of 4 kids born to us. My first child, Lori, passed away of a brain tumor at two and a half yrs. old. See her link below. We have Mike now who is 20, Amy who is 17, and Jimmy who is 15). Jimmy was born on Dec. 26th,1991. He survived a brain tumor, at age 2 & 1/2 yrs. old (which left him non-verbal) With Autistic tendencies. A sacral joint tumor, which was removed and replaced with 2 surgical screws when Jimmy was 7. He has Mild C.P. and suffers from a muscle disease known as Dystonia where his body stiffens and spasms. Together with his 3 Drs. we strive to give Jimmy the best life possible. The spasms arent quite under control yet, but we forge forward and keep trying new options. Right now he is on a medicine protochol, that helps but not as much as we would like. We remain positive and faithful that someday little Jim will be able to live a painfree life free from the clutches of Dystonia.

Jimmy with some of his Friends

Born: (fun fact) Yep, I was born the day after Christmas, how cool is that?? Dec. 26th.

Weight: Length:

Click on pic of Jimmy, above to go to photo album's. . Cookies? 3 dollars. Look on his face? PRICELESS~*
Jimmy-Joe CLICK ON "JIMMY-JOE" TO VIEW VIDEO. Turn up volumn

Journal

Tuesday, October 7, 2008 8:49 AM CDT
Hi Everyone. The weekend started off nice with Jimmy receiving some Macs mail. This t-shirt and toy came from Leslie, who has been following Jimmy's story thru Macs for quite some time now. She sent him these awesome gifts and Leslie, we thank you so much. :0) Then it was onto The party-store to check out some Halloweeen costumes.........As you can see by the pictures, Jimmy had a blast. We decided on a football costume for him because everyone keeps telling us he looks like Eli Manning from the New York Giants! (I had to look that one up). lol. here's a pic of Eli in case your all wondering who he is. lol. A little resemblance. lol. Then it was onto trying on some funny hats, just for fun. Jimmy as Merlin the magician and a Pirate. :0) We had a funtime and then it was off to Burger King. Yippeee. Thank you all for visitng Jimmy's page and keeping up with his progress. Love, Lin n Crew~* THE END TO A PERFECT DAY~~**

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Hospital Information:
P/O box 273577
Boca Raton , Fl. 33427-3577
What if God really said this: I see you; you're not invisible to me. I see the sacrifices you are making. I see your tears of disappointment. You may feel invisible to those around you, but you are never invisible to me. I miss nothing. No act of kindness, no task, no cupcake, no sequin sewn on is too small for me to notice and smile over. You are building a great cathedral. Keep building. You can't see it now, and it will not be finished in your lifetime. You will not have the chance to live there, but if you build it well, I will.
Links:

http://blogginwithbigmomma.blogspot.com/   My Blog
http://www.makeachildsmile.org   Kids with chronic/llife-threatening illnesses.
http://www.caringbridge.org/fl/loriann   My first child Lori who passed away of a brain tumor

E-mail Author: jimmyjoe

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