ALEXANDER DANIEL COOPER

WELCOME TO ALEX'S WEB PAGE.
Alex is 16 years old.He is suffering from a GBM IV brain tumour.He started this journey in August 2002.He has had surgery which has left a hole in his skull,radiotherapy and chemotherapy[Cisplatin and Temozolomide]He also takes Thalidomide.Alex is a brave and happy boy. Thank you for visiting his web page.Please feel free to sign the guest book,we enjoy looking at it. If you wish to email me can you please put the name Alex in the subject line.We have had alot of 'junk emails' sorry if I have missed anyone.

Journal

Friday, April 25, 2008 2:50 AM CDT

I was just watching a TV program To The Manor Bowen featuring Laurence Llewelyn Bowen and it reminded me that when we last went to London,we were coming out of Fortnums and Masons[we went in to use their toilets LOL]and Laurence held the door open for us to pass through which I thought was nice but then his wife Jackie's PA Donna very rudely pushed straight through Alex,pushing out the way.She seemed to come from behind us.Shook Alex up.
While watching the series,it came across that she was horrible and rude and even Jackie discribed her as never happy.
Over all I enjoyed the series and Laurence and Jackie came across friendly.

Alex has finally started his growth hormones,after I played up at the hospital,the nurse didn't even have his notes flagged up to contact me.I really hope I've made the right decision letting him have them.The nurse managed to make a large hole in the pavement at the top of the drive of the house with her car,the exhaust caught the tarmac.
He is taking 1.4mg and 1.6mg alternate nights.

He is also taking Thalidomide,this has been reduced by his Consultant,50mg every other day.

Alex is still having seizures,we tried to up Zonegran to 100mg but it was too much so at the moment he is taking 75mg night and morning.
Still on Carbamazapine 150mg twice a day,

Yesterday we went to hire his Tuxedo for his Prom on 16 May because we knew it would have to be ordered in,not many stock his size,He is only 4ft 10ins tall.

Beckys just bought a house,so fingers crossed it all goes through and hopefully will be moving in the next few weeks.

Read Journal History

Hospital Information:

Patient Room: E38

QUEENS MEDICAL CENTRE
NOTTINGHAM
UNITED KINGDOM
UK-01159249924

Links:

E-mail Author: lcooper9@aol.com

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