Samuel Nolan Ramsey

Born April 18, 2002 to Sam and Nancy Ramsey
Big brother Cooper and Big Sister Mackenzie
8lbs 14ozs 20 inches

I will lead the blind by ways they have not known, along unfamiliar paths I will guide them; I will turn the darkness into light before them and make the rough places smooth. These are the things I will do; I will not forsake them. Isaiah 42:16

This website was created to keep family and friends informed on the progress of Nolan. Nolan went through a cord blood transplant for a metabollic disorder called Hurler Syndrome. Nolan was diagnosed on January 24, 2003. His transplant was April 4, 2003 at Duke University Medical Center in Durham, North Carolina. Nolan is 100% engrafted and developing well. Nolan still has GVHD problems, many orthopedic issues and is developmentaly delayed but we have hope for a wonderful future for him and thank you for the continued prayers and support for our precious son. You can learn more about Hurlers on the MPS Society Web page.




View photos taken before/after PICU, and at the Rainbow of Heroes walk - held on May 3, 2003.

View photos taken at our family trip to the Rainbow of Heroes walk - held on May 1, 2004.

Silpada Designs Website: www.mysilpada.com/nancy.ramsey Journal Monday, July 7, 2008 9:49 AM CDT Hi all, Summer has been a whirlwind of activity. We spent two weeks driving around in Texas visiting family, doing our depositions for the spa and vacationing with the Stayers & Heilheckers (Sam's Sister and Brother) in Galvaston. It was great, but we were glad to get home and get back to our house and dogs. Nolan was glad to get back to clinic,except for the needle sticks. He seems to be having such a hard time with accessing his port lately. Everything else about clinic is great, but he puts up a fight now when they try to access. Ileen and Mary his nurses in Blood Center have created some games to help him get through it. He also has developed an avertion to Doctors. Dr. Ed and Ralph are not on his good list right now, we are not sure why, he used to love them both. He still loves his nurses and all the treats he gets while at clinc. Maybe he is just tired of it all, I know I am somedays. Five years is a long time for continued clinic visits. We have not been able to go back to Duke in two years, the cost of the trip is just too much right now. So we are setting up some new doctors here. Yeah just what I wanted more doctor visits!! lol School starts here August 18th, so summer is on the downhill slide, we have about five weeks left, it seems to have zipped by this year. Nolan will start 1st grade! WOW! I can't believe it. He is nervous but excited I think. I have started something new. I am now selling Silpada Jewelry. It is great sterling silver jewelry. The parties are great no formal presentations and everyone just loves the jewelry, it sells it's self. It has been fun and not too stressful so far. I love it. If anyone wants to see the jewelry or have a party just let me know!!! The Spa thing has really taken a toll on me and I needed something lighter. Speaking of the spa, we will go to court in october, I don't know how it will go but I am trying to let God have it all, I have never dealt with truly dishonst people before and it does not feel good I pray that the court system will work. The weather here has been great this summer, not too hot and not too cool upper 80's most days, so if you are looking for a great place to visit we are here and available I have two guest rooms ready for use!!! We are close to the mountians! 20 minute drive! We would love to have anyone willing to make the trip! Casa Ramsey is open year round. Ski season will be coming soon! I am booked for July 26- Aug 1 we have a mission team coming to work in the community and I will house 14 teenage girls!! are we crazy or what! Cooper should enjoy it! Actually he will be going to another house for that week with all boys. I do have a prayer request for a young boy named Josh from our church will be going in for surgery on July 16th. He has leukemia, it was in remission but just found out this week that it is back. Please pray for his family. Josh is 12 years old and very scared. He will be at Children's here in Denver. Nolan and I will be there for clinic the day he has surgery and plan to go be with his family for a while that day. Anyway that is about it for now. I don't know if anyone reads this anymore but I will still update when I can. Love and Blessings, Nancy, Sam, Nolan, Cooper and Boo Read Journal History Sign and View Guestbook View Photos Hospital Information: Patient Room: HOME HOME!!!!!! The Ramsey's 2099 Madison Way Erie, Co 80516 303-604-6751 Links: http://www.mpssociety.org/index.html   Info. on MPS (Hurler Syndrome) http://www.dukechildrens.org   Info. on stem cell transplant http://smilequilts.com/index2d.html   Nolan's smile quilt
	E-mail Author: samdramsey@comcast.net
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