Samuel Nolan Ramsey

Born April 18, 2002 to Sam and Nancy Ramsey
Big brother Cooper and Big Sister Mackenzie
8lbs 14ozs 20 inches

I will lead the blind by ways they have not known, along unfamiliar paths I will guide them; I will turn the darkness into light before them and make the rough places smooth. These are the things I will do; I will not forsake them. Isaiah 42:16

This website was created to keep family and friends informed on the progress of Nolan. Nolan went through a cord blood transplant for a metabollic disorder called Hurler Syndrome. Nolan was diagnosed on January 24, 2003. His transplant was April 4, 2003 at Duke University Medical Center in Durham, North Carolina. Nolan is 100% engrafted and developing well. Nolan still has GVHD problems, many orthopedic issues and is developmentaly delayed but we have hope for a wonderful future for him and thank you for the continued prayers and support for our precious son. You can learn more about Hurlers on the MPS Society Web page.




View photos taken before/after PICU, and at the Rainbow of Heroes walk - held on May 3, 2003.

View photos taken at our family trip to the Rainbow of Heroes walk - held on May 1, 2004.

Silpada Designs Website: www.mysilpada.com/nancy.ramsey Find me on facebook!! Nancy Davis Ramsey Journal Tuesday, May 26, 2009 11:33 AM CDT Hello, Nolan is doing great today. He is getting around alot better. Not all on his own but he will be soon. We have to watch him every second so he dosen't wonder off by himself. He has been sleeping in his room now for almost a week, of course Sam or I have to sleep in there with him, but we are one step closer. His pain seems to only be in the mornings right after he gets up and if we have had him out. The leg pain seems to be the worse. His skin is awesome, I have never seen it look this good, no rashes and very soft. The brace is hot and we have to keep the house really cool. I don't think we will be outside much this summer. He really is doing better than we anticipated, we are so glad. Thanks for all the prayers, they have meant a lot to us. Now just pray for a smooth summer with no set backs. Nolan will see the surgeon again next Wed, June 3rd. Grammy returned home on Sunday, on their way home she broke her ankle, she got out of the truck at a stop and it snapped. Ouch! So she is now off her feet for a few weeks. Hope she has a quick recovery, gets lots of rest she deserves it. We will miss her greatly, she was such a big help with running the house, running kids around to activities, cooking, cleaning, helping with Nolan, I don't know how I will manage without her here. At least Nolan is up and around more and he helps move himself from the bed and chairs now. Nana will be going in for a procedure with her heart on Monday, June 1st. They will be stopping her heart and restarting it and giving her some new drugs in hopes that it will stay in rythem, if it does not work, she will be having open heart surgery. Pray that this new drug will work. I am not sure how we will work things if she has surgery, Nolan still requires a lot of care. When the rains come they just keep coming!!! This year has been one of our more challenging years, I keep thinking what more could happen, (don't answer that)I know challenges develop character and such but haven't I developed enough? Not to be complaining. We are so greatful for a successful surgery, Sam's job is going well(he has one, that is more than some people right now), Cooper and Kenzie are doing great. Wonderful friends. We have a beautiful home, good food and clothes on our backs, it could be a lot worse! So just taking a little time to count my blessings. Seriously if anyone wants to visit Colorado this summer, come on, we are here with nothing going on, we would love to have guest. Well that's it for now. Love and Blessings Nancy Read Journal History Sign and View Guestbook View Photos Hospital Information: Patient Room: HOME HOME!!!!!! The Ramsey's 2099 Madison Way Erie, Co 80516 303-604-6751 Links: http://www.mpssociety.org/index.html   Info. on MPS (Hurler Syndrome) http://www.dukechildrens.org   Info. on stem cell transplant http://smilequilts.com/index2d.html   Nolan's smile quilt
	E-mail Author: samdramsey@comcast.net
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