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A Glimpse into the lives of Cody and Gunnar
Journal Friday, June 16, 2006 9:19 PM CDT If you are so inclined to Pray, I would like to request that you keep Gunnar in your prayers over the next couple of weeks. You may remember that both boys started having severe allergy symptoms about a month ago. They were both put on Zyrtec and Singular. Cody has been having asthma also, so he is using his inhaler regularly. Neither have responded well AT ALL to the meds and therefore will be seeing the Allergist here in the next couple of weeks. Gunnar's appt. is first...next Wednesday...so he had to stop taking the Zyrtec as of tonight. His last dose was last night. He is already in a bad way...both eyes still red and crusty with goo every morning when he wakes up. Bless his heart his nose pours and he is developing the lumps in front of both ears that has indicated an infection always in the past. We are about to find out just how well the Zyrtec has been working. Two days before his appt. he must also stop taking the Singular, so I fear by Wednesday he will be absolutely misreable. Hospital Information:
Links: http://health.groups.yahoo.com/group/ACED/ Support group for children with Eosinophilic Disorders |
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E-mail Author: mrspatriot70@aol.com |
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Cody was our miracle baby. After many years of test after test, too many surgeries and all kinds of unsuccessful fertility treatments, we decided to adopt. Little did we know that God had other plans for us. The adoption fell through at the very last moment, leaving us crushed and exhausted. We had been trying for nearly 8 years to have a child. Well meaning relatives and friends strongly encouraged us to start looking for another child to adopt, but Hal and I decided that we had done everything we humanly could. The one thing we had failed to do was put our faith in God. We had know idea what the future held for us, but we put our complete faith in God, knowing that he would reveal his plan for us. Seven months later we learned together that I was pregnant with Cody. Nine months later we were the proud parents of an 8lb 6 oz adorable little boy. The day after Cody was born we knew something was wrong. The doctors told us it was just gas and then colic. It wasn't until Cody was 2 1/2 and his younger brother, Gunnar, was diagnosed with a very rare Auto Immune Disorder, that we understood what was wrong with Cody. By then Cody was doing much better thanks to a wonderful Pediatrician who had placed him on a special formula. Today Cody has a mild form of Eosinophilic Disease. His last scope showed only the Duodenum was affected by this disease. Cody also has mild Gastroparesis, Severe Seasonal Allergies, a few food allergies and Asthma. His Asthma continues to get worse. Before he only had attacks when he was sick with a cold or respiratory infection, but recently we discovered that he has exercise induced asthma. His doctors have him on Singular for his Seasonal allergies and his asthma. He also uses Albuterol before exercise and as needed and a steroid inhaler, called Flovent, daily. Cody's medical history also includes developmental delays with his walking, running and balance. Cody was evaluated by a Physical Therapist last summer. He was diagnosed as being Hypermobile throughout. His leg muscles are Hypotonic and there is decreased selectivity through his bilateral dorsiflexors and plantarflexors, hip extensors, hip abductors and knee flexors. His feet have no arches and both are pronated. Honestly, the report is complicated and full of words I don't begin to understand. In general it was determined that his Gross Motor Quotient is well below average and his Locomotion and object manipulation skills are below the 25th percentile. He was in Physical Therapy for a couple of months and then we had problems with insurance. For now we are working at home, using a Trampoline and exercises we learned through therapy. I will be using the journal below to keep our family and friends updated on his doctors appointments and what is going on with him medically.
