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Welcome to Katelynn's web site.
It is here to keep everyone updated on how Katie is doing.
On May 24, 2001 Katie was diagnosed with Medulloblastoma at 1.5 years of age.
In 2005 Katelyn was also dignosed with Neurofibromatosis type 2
Make sure you sign Katie's guestbook! Her and Felica love to hear from all that visit!!!!
Check out Katie's Smile Quilt
We have a guestmap now!
Show us where you are from!
Check out Felica's very own page!!
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Stop by and visit a wonderful support group!!!
Journal
Sunday, October 26, 2008 7:41 PM CDT Well we just got back from another visit to BC Children's hospital.
Katie's hearing loss has remained stable. Her inner ear functions are relatively normal and they are thinking it isn't chemo induced. Probably it is caused from the tumor in her other ear, the acoustic neroma. It does have a name... bi-lateral hearing loss. It is rare but does happen in a few people and we all know if it is rare Katie will develop it.
Her growth has improved immensely since starting growth hormones. She has grown 9cm in the past year! When I took out her winter cloths they were ALL too short! Amazing since she has been wearing the same pants for over two years prior.
We are going to get her neurophysiology testing done in the near future. We have noticed a bit of anger issues and not knowing personal boundaries. Her funding at school for her assistant has been cut fro 20 hours a week down to five! Not good. Hopefully the testing will give the recommondation for more funding.
School is still going well and she still loves to read! For her not to have any learning disabilities is a miracle.
We will head down again in spring. Until then we just keep swimming.
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