Mason's Place

Welcome to Mason's web page, a place to keep you updated on our little doodlebug, the cutest little redhead in the world. Mason has been diagnosed with X-Linked Myotubular Myopathy

Journal

Thursday, January 18, 2007 7:13 AM CST

It seems like it has been forever since I updated this journal - I have really been neglecting this page -sorry!!
Mason is now 5 1/2 years old, he is doing really well. Thus far we have stayed pretty healthy through this cold and flu season (knock on wood). Mason is currently in kindergarten. He has a wonderful home school teacher who comes twice weekly for several hours each visit. Mason cannot attend traditional school as he is very susceptible to illness and always gets sick around groups of other kids. It seems like what would be a routine illness for other kids lands Mason in the ICU. We do goto the school for outside social activities. Mason also receives in home speech, PT and OT. Although Mason does have some speech (Mommy and Daddy can fully understand his needs), we are in the process of obtaining an augementative communication device for him. Mason loves going for walks in his wheelchair, going on trips in the van (even more fun for him since we had a DVD player installed), watching The Backyardigans, The Wiggles and Blues Clues. He is such a good singer, he loves music and will sing along with any and all. Right now he and Daddy are "enjoying?" another season of American Idol. I will be adding new pictures to this page soon. Hope you are all well.

Hospital Information:

California Pacific Medical Center
2333 Buchannan St.
San Francisco, CA

Links:

E-mail Author: scfontana@snowcrest.net

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.