Caleb is a sponkey outgoing little boy
who was dealt a bad hand in life since birth.




When Caleb was born he was born
with a club foot on his right foot.


In the first year of my son's life he spent
so much time in and out of the
hospital for castings, braces, and surgery.


Caleb knew from birth that he was special.

When the nurses brought him out to see the family, and they were all there, Caleb smiled and melted every memeber of the families hearts. To this day all Caleb has to do is bat his big brown eyes and mushhhhhhhhhh!!!!!


After the stuff with his foot mellowed out and Caleb was a little over 3 we realized something else about Caleb.He wasn't really talking. I mean he's say a few words but me and my husband just didn't want to face it. So we decided to take him to a local school that deals with speech and learning delays and had him tested and we found out that Caleb was learning delayed by 2 yrs and speech delayed by 2 1/2 years. So we enrolled him into the school. In 6 months time Caleb exceled with his learning ablitites jumped
and his speech is clearing up.


Then on April 12, 2004
Caleb was hit again this time

A.L.L. LEUKEMIA !!!

Of all the things in this
world my son was cursed yet again.

When I found out when the doctors told me, I just couldn't believe it, there was no way. but you look at him and he was just laying there in the bed all the docs and nurses buzzing around him and all I can do is stare at my son. Looking so small laying there in that bed! And as of April 13th our newest battle began. To save his life.

Caleb spent almost 40 days at Loma Linda Children's Hospital. And everyday I was right there. I spent nearly every night there so Caleb wouldn't feel he was alone. In total I came home maybe 6 days a few hours here and there and a couple over nite trips, where I made the mistake in teaching caleb how to call home, try 14 times in one day) And the over nite trips home was only so I can get the house cleaned up so he could come home.

And on May 18th we brought him home finally.

In 5 1/2 months of being in the hospital
Caleb grew up ALOT.
You see it in his eyes
and the way that he carries himself.
He is our little man !

From May 18th till now has been alot of back and forth for chemo treatments, bloodwork, and bonemarrow withdrawals. But last week Caleb needed to have another blood transfusion his 6th one.
His hemaglobin had dropped to 6.4
when its supposed to stay over 11.5.

Caleb has his good days then he has his bad days and the bed only seems to get him after chemo treatments but he still goes and goes and goes no matter how bad he feels, he just needs to keep going. And it hurts me and my husband to have to say no.


See our apartment complex is going thru some construction so during the day I have to keep Caleb in the house. I have to keep him couped up in the house all day long. He can't go outside because of all the dirt and debries flying around. we wait till the crew goes home then he has to put his mask on so he can go outside and play but that mask stays on. And we take him anywhere in public he has to wear the mask as well you never know who has what. He can't go swimming because of the chemicals and other people in the pool you know possibly peeing in the pool...he can't play in the dirt can't pick flowers can't play with bugs, everything a typical 4 yr old likes to do. He goes outside for
any amount of time he has to be slathered in sunscreen.

Its so hard to sit here and deal with it on a day to day basis and sit here and tell him no you can't do this no you can't do that...why??? he asks because the doctors say you can't how the heck to you make them understand??

Also to let everyone know Caleb has recieved his wish we are going to disney world in Oct for 5 days. We are so looking forward to this trip it means no docs no shots no nothing its just all fun for a whole 5 days. A very much needed rest.


If anyone comes across this page and wishes to send caleb cards or gifties please send it to
1178 Sapphire pl

Hemet

CA

92543
















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This is Us.
My husband Gaylen Me and Caleb
when Caleb was originally released from the hospital on May 18th 2004.


THE INs AND OUTs Of Caleb

Child's name Caleb G.

Child's Date of Birth. 7/17/1999

Child's Main Diagnosis Acute Lymphoblastic Leukemia

Secondary Diagnosis/problems Club Foot
and Severe speech

List any physical limitations the child has.
Being able to run like a normal child
as well as has a hard time walking at times


Parents' Names Shannon And Gaylen S.

Child's Likes (i.e. music types, books, collecting, hobbies, etc.) caleb likes a number of things he likes to color and do crafts especially when he can glue things. He likes to watch cartoons and play video games. He collects pokemon cards and oth. He loves spideer pokemon items.

Caleb has 4 step sibblings Johnny who is 30 a sergent in the Army and Eric who is 29 and currently over seas in Germany he is a feild medic. Christina who is 27, and Steven who is 25. Caleb is also an uncle. Lauren is 11( Johnny's daughter), Nicholas is 8(christina's), Jaiden is 5(Christina) and Mitchell(Eric) is 6.

We have an exstenive family that is all over the west. We have family in both washington anzon (Eric) is 3, Zoe is 2 and our newest arrival on Dec 31 2007 is Jaquiline (Christina). Johns girlfriend is due on april 2nd so we have yet another grandbaby And a vast majority oon the way. When Caleb was taken to the hospital and we found out that he had leukemia it was a large devistation on our family. We have all had to learn how to cope and deal with caleb being in and out of the hospital. Especially my husband and myself. Its been extremely hard on us. finacially emotionally and physically. Caleb has spent so far to date over 60 days in the hospital since his diagnosis. When he is hospitalize I spend nearly the whole time there with him coming home on occassion to deal with the bills and to get a lil rest from being at the hospital. And caleb just sucks it all up. He actually likes being there minus all the tubes. he gets so spoiled with the staff and visitors when he's there.

Caleb is the glue to our family he is the first grandbaby and great grandbaby (biological) in our family and since he's so close to the main members of the family he is overly loved and cared for. so you can imagine what this has done to our family.

If you want to know more about caleb please mark this page and I will update as much as possible.




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HOKEY POKEY

COURTESY OF
SING-ALONG MIDI SONGS

Journal

Wednesday, May 28, 2008 11:16 AM CDT

Well we are working on our newest projects for Caleb's Hope. I am working on making squares to make small afgans for the onocology unit at loma linda for the kids. Also we are now starting our raising for the annual Light the Night Walk for the Leukemia Lymphoma Society. this is our 5th season of doing this and we love every minute of it. Caleb was the honored hero for the inland empire back in 2005 and was the pennies for patients honored hero for fresno in 2007 as well as my honor in 2007 for woman of the yr nomination. Caleb is looking for sponsers for this walk once again. I always do the sponsorships in his name he's the one that fought the hardest and he's the co captian for our team. This event for our family is big we are raising money for a cause something that we all feel heavy about. and this yr its even harder due to the fact in our family we now have 2 ppl that have fought or are fighting leukemia my uncle Mac was diagnosed with multiple myeloma on Jan 8th and is fighting his fight with Caleb's guidance. Please if you;d like to sponser caleb here's his link www.active.com/donate/ltnSanta/2501_CalebG

Hospital Information:

Patient Room: XXXXXXXXX

Loma Linda Children's Medical Center
11234 Anderson St
Loma Linda, CA
909-558-8400

Links:

E-mail Author: calebshope@charter.net

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