Alexis Valdez

Welcome to Alexis' Web Page. It has been provided to keep people updated. Alexis has a condition called Hurler Syndrom or MPS I. He is missing an enzyme called Alpha-L-induronidase. He receives ERT (enzyme replacement therapy). It is a synthetic enzyme called Aldurazyme. Alexis receives this enzyme on a weekly basis.

Alexis loves to play with trains. His favorite is Thomas the train. He loves to sing and dance. He is full of energy, he keeps his mom going 24/7. Alexis has an older sister named Bianca and an older brother named Jesus (chuy).Alexis was dx with MPS I-Hurler Syndrome at the age of 1 1/2. Alexis turned 7 yrs old in January 2005. He has been on ERT since May 2003. Please check back from time to time to see updates about Alexis and please don't forget to sign the guest book!

Journal

Monday, April 4, 2005 10:11 PM CDT

Sorry I haven't posted in a while. My comp was down.

Alexis finally had his surgery. It was such a success. His mom was told he would be in ICU for 8 to 10 days. Well he had surgery on Monday and was admitted to ICU. On Tuesday he was put on the regular floor. On Wednesday he was released home!!!! His ERT's have been great. I am glad to say he is doing well!!

Gabbi

Read Journal History

Hospital Information:

Children's Hospital Los Angeles

Los Angeles Ca

Links:

E-mail Author: jacalera@sbcglobal.net

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.