This page was created to keep friends and family updated during Lindsey's treatment for Fanconi Anemia.

Lindsey is a wonderful little girl who loves horseback riding, doing cheernastics, playing Littlest Pet Shop, Pooh, Disney Princesses and Fairies, books (favorites: Nancy Drew mysteries and any horse or other animal stories) - and all things pink! Lindsey was born June 1, 1999 and has a rare genetic condition called Fanconi Anemia (FA), which is a deadly inherited anemia that ultimately leads to bone marrow failure.

Each day with Lindsey is a blessing.

Please visit www.fanconi.org to learn more about this rare condition.

Please visit www.marrow.org to learn more about the National Bone Marrow registry.

Thank you for visiting our site. Please remember to pray for Lindsey and all FA kids and adults


Thank you.

Journal

Thursday, June 4, 2009 5:28 AM CDT

Lindsey's 10th birthday was Monday June 1. Yes, my girl is now 10 years old! She had a wonderful skating party with her friends the weekend beofre her actual birthday and had a great time. It is so nice to see Lindsey enjoying herself with her friends. Also, Lindsey successfully made it through the school year being homeschooled by mom and won an award for being on the all A honor roll for the year. She will begin 5th grade in August with all of her old school friends. It was very important to me that Lindsey return to school with her friends and not lose a year of school so I am glad that the decision to homeschool for 4th grade worked out so well. We are thankful that Lindsey's regular school worked with us during this time. Summer vacation has started and we have some fun trips planned such as camping and a trip to the beach. It has been almost 2 years since Lindsey has been to the beach and she is very excited to go on this trip. Healthwise Lindsey continues to do very well. We have an appointment with the endocrine doctor scheduled for August too check Lindsey's thyroid function (since we found out at transplant that she was born with only half a thyroid) and a re-check of her growth hormone production. Lindsey is still very petite and we had begun growth hormone therapy a few years ago before transplant, but stopped it after only a couple months when Lindsey's counts dropped.
Overall, we are feeling very blessed that Lindsey is healthy, happy, and full of energy. Thank you for checking on Lindsey and your continued prayers. Having the transplant behind us feels great, although we do realize that Lindsey's medical future remains uncertain. We feel hopeful as FA research continues that one day there may finally be a cure for this horrible condition. Right now we are enjoying every day we have with Lindsey, and are so grateful that she is healthy and happy. Our time in Minnesota will always make us thankful for where we are in Lindsey's treatment and reminds us of how very blessed we are to have her with us today.

Victoria - Lindsey's thankful mom

Links:

E-mail Author: vshathcock@bellsouth.net

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