Lindsey Tyler Hathcock

This page was created to keep friends and family updated during Lindsey's treatment for Fanconi Anemia.

Lindsey is a wonderful little girl who loves horseback riding, doing cheernastics, playing Littlest Pet Shop, Pooh, Disney Princesses and Fairies, books (favorites: Nancy Drew mysteries and any horse or other animal stories) - and all things pink! Lindsey was born June 1, 1999 and has a rare genetic condition called Fanconi Anemia (FA), which is a deadly inherited anemia that ultimately leads to bone marrow failure.

Each day with Lindsey is a blessing.

Please visit www.fanconi.org to learn more about this rare condition.

Please visit www.marrow.org to learn more about the National Bone Marrow registry.

Thank you for visiting our site. Please remember to pray for Lindsey and all FA kids and adults


Thank you.

Journal

Monday, May 19, 2008 2:30 PM CDT

Day +109

We arrived home safely late Thursday afternoon. Lindsey had a clinic appointment Friday morning at Children's Hospital in Birmingham and again today. Her counts look good, although they are still below normal. It is a good feeling to be home after being gone for 4 months. We have been sleeping very well at night. There is nothing better than sleeping in your own bed - in your own home. Lindsey is really enjoying being home and has adjusted well. She is glad to be around all of her "stuff" again, although we are all trying to get reaquainted with "home" right now. Lindsey is definitely more like her old self since being home and is starting to eat a bit better.

Lindsey would like to see all of her friends, but is still under certain restrictions such as having to wear her mask around other people. Perhaps as we get closer to the 6 month mark, before we leave for MN at the end of July, we can arrange for a playdate with Lindsey and some of her friends. Lindsey is disappointed about not being able to have a big birthday party this year, like she usually does. I am so ready for her to be able to enjoy just being a kid again, but I know that once she passes the 6 month and 1 year milestones in her recovery she will actually be able to do more thing than she was able to do prior to her transplant. Still, it is hard to watch her want to do so many things that she cannot right now.

I am still unpacking our stuff and plan to take my time with it. I am on leave from my job until after Lindsey's 6 month check up in MN. I need to get so many things in order before then, such as figuring out how to go about homeschooling Lindsey next school year. It will all work out, though. All I can do is take things one day at a time.

Thank you to everyone who continues to remember Lindsey in their prayers. We are all pretty tired right now and trying to decompress from the last 4 months, but we are glad to be home again.

Victoria - Lindsey's thankful mom

Hospital Information:

Home

Links:

E-mail Author: vshathcock@bellsouth.net

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